Welcome to hyperinsulinism.dk

Welcome to hyperinsulinism.dk, a site dedicated to the condition called CHI – Congenital hyperinsulinism in infants.

CHI is a condition that causes newborns to have abnormally high levels of insulin, which is a hormone that helps control blood sugar levels. Babies with this condition have frequent episodes of low blood sugar (hypoglycemia). Hypoglycaemia, due to CHI, is a relatively rare but potentially serious condition occurring soon after birth. In infants, these episodes are characterized by a lack of energy (lethargy), irritability, or difficulty feeding. If not treated, repeat episodes of low blood sugar increase the risk for serious complications such as breathing difficulties, seizures, intellectual disability, vision loss, brain damage and coma.

The condition is rare with the estimated incidence of CHI being one in every 40,000 to 50,000.

We created this site based on our own experience and journey and our hope is that it can help inform about the rare condition and help parents and relatives through the toughest of times.

Charlotte & Lars ♥